Lucy is doing well...we are still dealing with eating issues that are frustrating to say the least! She has trouble with her frontal bite--which means she doesn't have enough strength to bite off food--she tends to just tear it off. Also, she stops eating before she gets full...and so she is hungry quite often. We have been seeing a feeding team at Cardinal Glennon at least once a month to see how she is doing. They are not happy with the fact that she has not gained any weight to speak of since last March or so. She is our 23.9 lb string bean! LOL She receives speech therapy once a week to work with her on this. The feeding team has put her on an eating schedule--what times and for what length of time she is allowed to eat. If she isn't done in that time frame--it doesn't matter, the food goes! It has been a challenge...but we are going to get this figured out.
Next week, we have a transition meeting with the therapist, the local school district and someone else (can't remember who) to talk about Lucy aging out of therapy--and to discuss what kind of help she can get after 3 years old (if we still need it--Lord willing we won't!).
Lucy also just got over a round of the croup--first time ever! It is a scary thing to hear your child gasp for breath! ACK! We had her in the emergency room at 6:30 Friday morning. They put her on steroids and antibiotic and cough medicine. We had to wean her off the steroids, but even doing that she had withdrawal. It was crazy--she woke screaming at night and had horrible night sweats! Don't want to do that anytime soon again!
Other than that--I think life is pretty normal!
Check back sometime for an update--hopefully before the end of the month--LOL!!!!
Oh, before I go--a picture!
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